The Diving Bell and the Butterfly: A Memoir of Life in Death

"Jean-Dominique Bauby had it made, or so he thought. At age 43 he was the editor of Elle magazine, cynical, and a stranger to failure. Then he had a massive stroke that left him in a coma for three weeks. When he awoke, he suffered from a rare neurological disorder called "locked in syndrome." He could hear a little and his brain worked fine, but he was totally paralyzed and couldn't speak. He could blink with his left eye. With his one good eye Bauby dictated this remarkable memoir, letter by letter, to his amanuensis. A speech therapist devised a chart with the letters of the alphabet arranged by frequency of use. As she spoke the letters Bauby would blink for the letter he wanted. Though locked in the heavy "diving bell" of his useless body, Bauby's imagination soared as playfully as "the butterflies that flutter inside my head."

Bauby's book consists of what he calls his "bedridden travel notes." He lost sixty-six pounds in twenty weeks. When a fly landed on his nose, he wiggled his nose to no avail, only to conclude that "Olympic wrestling is child's play compared to this." Taking a bath sometimes brought elation and at other times depression. Sundays were the worst, when hospital staff and visitors were at a minimum. Bauby relates some of his dreams, memories like a trip to Lourdes and the last time that he saw his father, and cherished visits from his daughter Celeste, age eight, and son Theophile, age ten. His description of their visit to the beach on Father's Day is wrenching: "Grief surges over me. . . There are no words to express it. My condition is monstrous, iniquitous, revolting, horrible. Suddenly I can take no more. Tears well and my throat emits a hoarse rattle that startles Theophile. Don't be scared, little man. I love you."

Bauby's public updates, and eventually this book, belied the rumors swirling around Paris that the famous editor was "only a vegetable." Mail poured in to him and he hoarded the letters like little treasures. In 2007 a film by the same title told his story, earning four Academy Award nominations. Bauby died in 1997 just days after the publication of his book."
~ Written on 2008-08-06

"Jean-Dominique Bauby is a victim of 'Locked-In Syndrome." At the age of 43, he suffered a massive stroke that left him unable to move or speak. His only means of communication -- his left eyelid. Bauby spent weeks painstakingly dictating this memoir -- letter by letter.

I read this book in one sitting, it was that captivating. Through short vignettes, Bauby manages to describe the minute intimacies of his life in astonishing detail. From his first experience in a wheelchair, to bath-time, and finally through the development of his communication 'code' - Bauby's emotions touch on both anger and sadness without becomings desperate or hopeless.

There are also times of hope and, ultimately, love -- when he describes the visits of his children or memories of this father. Throughout the book, I was struck by Bauby's ability to be thankful for small things -- the ability to move his limbs a fraction of an inch, sitting in the Cinecitta, and the the ability of his mind to fly away like a butterfly.

It is not until the end of the book that Bauby describes his last day as a 'perfectly functioning earthling.' This most important day in his life is detailed with very little emotion. This makes the catastrophic details all the more haunting.

This is one the most poignant memoirs that I have ever read, and one of my favorite books of 2008."
~ Written on 2008-07-27

"Absolutely amazing. And a quick read, too, so you really have no excuse to miss it. SHUT UP. NO EXCUSE. Jeez, you can even borrow it from me, okay?"
~ Written on 2008-07-01

"This is a wonderful book. Very quick read. Makes you truly appreciate your own life. Highly recommended."
~ Written on 2008-06-27

"

Bauby gives us a truly remarkable and inspirational story of his life trapped inside a body that no longer serves him.

But his mind remains as sharp as ever.

He transcends his immobility with grace and a remarkable gift of a rich, lucid imagination.
He is free in his mind to enjoy all of life and it's lush sensory gifts and memories...to take flight as if a butterfly.

A heartbreaking true story.



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~ Written on 2008-06-21